Cancer Resources
4women.com
Provides fashionable scarves, accessories and natural makeup for women and girls who are experiencing hair loss. The beaubeau scarf is a unique alternative to wearing a wig. It comes in several different fabric choices and a myriad of colors and designs. Our swim cap (swimbeau) is a wonderful alternative to the traditional rubberized swim cap. It’s secure, comfortable and very fashionable. Our motto is “just because you have lost your hair does not mean you have lost your sense of style.”
American Association for Cancer Research (AACR)
The mission of AACR is to prevent and cure cancer through research, education, communication and collaboration.
American Cancer Society
The Hope Lodge provides free housing to eligible cancer patients who are receiving treatment at one of the area medical facilities.
(352) 3376-6866
2121 SW 16th Street
Gainesville, FL 32608
American College of Surgeons Commission on Cancer
The American College of Surgeons Commission on Cancer (CoC) is a consortium of professional organizations dedicated to improving survival and quality of life for cancer patients through standard-setting, prevention, research, education, and the monitoring of quality comprehensive quality care. The CoC is the only multidisciplinary accreditation program for cancer programs in the United States. Currently more than 1500 programs are accredited by the CoC. For a list of programs please visit the CoC Hospital Locator at http://www.facs.org/cancerprogram/index.html.
312-202-5000
633 North St. Clair
Chicago, IL 60611
American Institute for Cancer Research
Provides information about cancer prevention, particularly through diet and nutrition; featuring a toll-free nutrition hotline, pen pal support network and research funding.
American Psychosocial Oncology Society
Helpline through which cancer patients, caregivers and advocacy organizations may obtain referrals for local counseling services throughout the United States. This referral program aims to connect cancer patients and their caregivers to psychiatrists, psychologists, nurses, social workers and counselors skilled in the management of cancer-related distress.
info@apos-society.org
Referral Helpline 866-276-7443. Calls are accepted 24 hours a day through a voicemail system.
5034A Thoroughbred Ln
Brentwood, TN 37027
American Society of Clinical Oncology
Provides resources for healthcare providers but includes patient-friendly tools such as help finding an oncologist, and up-todate information about cancer policy issues.
Be The Match
Provides assistance to patients and their physicians in the search for an unrelated stem cell donor. Provides general information about the stem cell transplant process, the search process, financial issues associated with the transplantation process and Patient Advocacy.
C-Change
The mission of C-Change is to eliminate cancer as a public health problem, at the earliest possible time, by leveraging the expertise and resources of its members. C-Change is both a forum and a catalyst for identifying issues and major challenges facing the cancer community and for initiating collaborative actions to complement the efforts of individual C-Change members. C-Change focuses on advocacy, strategic initiatives and research. Free toolkits and resources available.
Cancer and Careers
Cancer and Careers is a national nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. Its free services include a comprehensive website and library of publications in English and Spanish; legal and insurance information; career coaching; resume review; professional development micro-grants; and national events and workshops for people with cancer and their healthcare providers, coworkers and employers.
For Spanish speakers: www.cancerandcareers.org/espanol
Cancer Answers—H Lee Moffitt Cancer Center
Answers for cancer related questions.
800-456-7121
Cancer Care, Inc.
A national nonprofit agency that offers free support, information, financial assistance and practical help to people with cancer and their loved ones. Services are available in person, over the phone and through the agency’s website. Spanish language help available.
Cancer Hope Network
Provides support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.
Cancer Information and Counseling Line
A toll-free national service provided by AMC Cancer Research Center. Provides emotional support, up-to-date medical information and resource referrals through counseling. Available Monday through Friday, 8:30 a.m. to 4:30 p.m. MST.
Cancer Support Community
www.cancersupportcommunity.org
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops‚ nutrition guidance‚ exercise sessions and social events.
888-793-9355
Cancer.Net
The patient information website of the American Society of Clinical Oncology provides timely, oncologist-approved information to help patients and families make informed healthcare decisions.
Cancer101
Cancer101’s mission is to empower cancer patients and their caregivers to take control over their diagnoses and engage them as active partners in their care, by arming them with a toolkit to navigate their cancer journey.
CancerCare Co-Payment Assistance Foundation
www.cancercare.org/copayfoundation
Offers grants for those with breast, lung, colorectal or pancreatic cancer. Assistance is provided to cancer patients based on proof of inability to pay by the National Cancer Institute and at CancerNet, which is run by ASCO (American Society of Clinical Oncology).
CancerCare Inc
CancerCare provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones and the bereaved. CancerCare programs including counseling and support groups, education, financial assistance and practical help are provided by professional oncology social workers and are completely free of charge.
Cancervive, Inc.
Since 1985, Cancervive has provided counseling, education and advocacy to cancer patients, family members and health professionals. Popular education materials include books, DVDs and games.
Chemocare.com
Scott Hamilton’s site focuses on chemotherapy—managing side effects, survivor experiences and more.
Coalition of Cancer Cooperative Groups
Mission: to improve the quality of life and survival of cancer patients by increasing participation in cancer clinical trials. Features a tool to search for current trials.
Commission on Cancer
The Commission on Cancer (CoC) is a consortium of professional organizations dedicated to improving survival and quality of life for cancer patients through standard-setting, prevention, research, education and the monitoring of comprehensive quality care.
CURE
CURE quarterly magazine is available free of charge to cancer patients, survivors and caregivers. Subscribers receive clear and comprehensive information in order to better understand cancer. Additionally, CURE, in association with the American Cancer Society, publishes an annual Cancer Resource Guide, which is sent to every new subscriber. CURE will also send free magazines for your support groups, community events, churches, etc.
CureSearch
CureSearch for Children’s Cancer is a 501(c)3 U.S.-based non-profit foundation that accelerates the search for cures for children’s cancer by driving innovation, overcoming research barriers and solving the field’s most challenging problems. We fight every day to make new, better treatments possible for the 43 children diagnosed with cancer each day.
We do this by:
- Catapulting strong medical research through the research pipeline to advance better, less-toxic children’s cancer treatments
- Breaking down barriers and convening the right players to focus on our shared goal: saving kids NOW
- Providing resources and education, so no child faces a cancer diagnosis without a fully-equipped support team
Dia de la Mujer Latina, Inc.
Promotes health awareness to the underserved Latino community by providing ethnicspecific education with a focus on early detection screening of breast and cervical cancer, as well as other chronic diseases. Resources for hosting a Health Fiesta.
Headcovers Unlimited
Our company was founded by Carol Galland, a breast cancer survivor, and her daughter over 20 years ago. We are devoted to helping people with hair loss due to cancer or chemotherapy treatments to look and feel beautiful while battling their hair loss. Our products include soft hats and scarves, sleep caps, wigs, false eyelashes and eyebrows, as well as other hard to find hair loss products. We have also created a vast resource library with a myriad of helpful cancer and hair loss tips and informational articles. We cover topics such as “How to Select Your Wig” and what to look for in a head covering.
Intercultural Cancer Council (ICC)
ICC promotes policies, programs, partnerships, and research to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the US.
Livestrong: Lance Armstrong Foundation
Focuses its activities on: survivor resources and support, survivorship programs, national advocacy initiatives, scientific and clinical research grants. A particularly useful tool is the Livestrong Guidebook which functions as a workbook and provides information that is needed from the time of diagnosis through cancer treatment and beyond—free through website.
855-220-7777
Mesothelioma Guide
Mesothelioma Guide provides information to patients with mesothelioma and their families. Mesothelioma is a cancer caused by exposure to asbestos. Generally, it affects 3,000 people in the United States per year. It affects the lining of the lungs, abdomen, and heart. By offering material on the causes and risk factors associated with mesothelioma, treatment options that are available, and prognosis statistics, Mesothelioma Guide is one of the top sites on the web for those affected by mesothelioma.
Mesothelioma Hope
Mesothelioma Hope is a comprehensive resource for the patients and families of those that are suffering from mesothelioma & other asbestos related diseases.
National Cancer Institute
Provides uptodate information on all cancer types, information on clinical trials, resources for people dealing with cancer, and information for researchers and health professionals.
National Cancer Institute’s (NCI’s) Cancer Information Service (CIS)
The National Cancer Institute’s (NCI’s) Cancer Information Service (CIS) is a federally funded cancer education program that was established in 1975 as an essential part of NCI’s mission and information efforts. The CIS provides accurate, up-to-date, and reliable information on cancer that is easy to understand. Information specialists provide personalized responses to a range of cancer questions, including cancer research and clinical trials, cancer prevention, risk factors, symptoms, early detection, diagnosis, treatment, living with cancer, and quitting smoking.
NCIinfo@nih.gov
1-800-422-6237
National Cancer Institute Cancer Information Service
BG 9609 MSC 9760
9609 Medical Center Drive
Bethesda, MD 20892-9760
National Coalition for Cancer Survivorship
A network of groups and individuals that offer support to cancer survivors and their loved ones. Offers the Cancer Survival Toolbox, a free, self-learning audio program designed to help people cultivate important skills to better meet and understand the challenges of their illness.
National Comprehensive Cancer Network (NCCN)
The NCCN Guidelines for Patients™ aim to help people with cancer and their loved ones discuss the best treatment options for them with their physicians. The NCCN Website covers a wide array of cancer topics for patients, caregivers and their families.
215-690-0300
National Volunteer Caregiving Network (NVCN)
National Volunteer Caregiving Network (NVCN) is an interfaith volunteer caregiving initiative that brings together volunteers to help people of all ages with long-term health needs to maintain their independence for as long as possible. Program availability and eligibility vary from one geographic area to another based on age, illness type and other criteria. Services are listed by state on the Website.
OncoLink
Affiliated with the University of Pennsylvania Cancer Center, this website provides information about specific cancers, updates on treatments and research advances.
Patient Advocate Foundation (PAF)
The Patient Advocate Foundation (PAF) is a national nonprofit organization that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys.
R. A. Bloch Cancer Foundation, Inc.
The foundation matches newly diagnosed cancer patients with trained‚ home-based volunteers who have been treated for the same type of cancer. Trained volunteers (about 600) talk to patients about their cancer experience. Publications available: Fighting Cancer, Guide for Cancer Support and Cancer There’s Hope.
Society for Integrative Oncology
Provides guidelines and resources pertaining to integrative oncology, treatment and helps search for open clinical trials.
Susan G. Komen for the Cure
A resource on many things relating to breast health and breast cancer. Lists community health grants, scholarships, research programs and more.
Vital Options TeleSupport Cancer Network
An organization that facilitates a syndicated cancer talk show linking callers with patients, longterm survivors, family members, physicians, researchers and therapists. Services in English and French.
Children and Youth
Children With Hairloss
Provider offers hair replacement to children with any form of medically-related hair loss. Program provides a wig and wig care kit, a hat with attachable hair, and free styling services. Provider also accepts donated hair.
734-379-4400
12776 S. Dixie Hwy.,
Rockwood, Michigan 48179
L Erickson USA
Provides a free headwrap or scarf in the pattern and color of your choosing for women or girls experiencing a loss or thinning of hair as a result of illness or treatment. Please call or visit the website to select the headwrap or scarf. Wraps and scarves can be shipped nationwide.
Livestrong
An online community for young adults affected by cancer
855-220-7777
Stupid Cancer
The I’m Too Young For This! Cancer Foundation is the nation’s largest support community for young adults affected by cancer (15-40) and serves as a bullhorn for the young adult cancer movement. They offer online and offline support communities nationwide through local events, social media, educational workshops, an international annual conference and a live weekly talk radio program.
The Ulman Cancer Fund for Young Adults
Wigs for Kids is a nonprofit organization providing hair replacement solutions for children affected by hair loss subsequent to medical conditions or treatment procedures. The hairpieces and services are provided without any associated costs to the families of the children.
Young Survival Coalition
A global organization dedicated to the critical issues unique to young women with breast cancer. Young Survival Coalition offers resources, connections and outreach so young women feel supported, empowered and hopeful. Free support groups over the phone and online advice about managing insurance or the lack thereof. Resources for the uninsured are listed as well.
Complementary and Alternative Medicine
Life Force Health and Wellness
Life Force Health and Wellness is a network of healthcare providers specialized in integrative medicine. Our program is designed to facilitate a variety of services complementary to one another so that you can experience the benefits of holistic healthcare. Our goal is to provide you with services that are effective and affordable so that natural medicine can be a integrative part of your everyday life. Now is the time to start your journey to better health with our “Bridge to Living Wellness” program”. Whether you are seeking relief for treatment side effects, nutrition counseling or stress management our program will help you remain strong and balanced for the best possible outcome. We support life!
MD Anderson Cancer Center Complementary
www.mdanderson.org/departments/CIMER
Integrative Medicine Education Resources—When properly combined with standard cancer treatments, some complementary therapies can enhance wellness and quality of life, but others may be harmful during or after treatment for cancer. This website is offered to help patients and physicians decide how best to integrate such therapies into their care.
1-855-745-0426
Memorial Sloan-Kettering Cancer Center Integrative Medicine
mskcc.org/cancer-care/integrative-medicine
Offers touch therapy, mind-body therapy, acupuncture, creative therapy, nutrition counseling, and exercise programs to improve strength and promote relaxation. Services available for cancer patients and family members.
212-639-2000
National Cancer Institute Office of Cancer Complementary and Alternative Medicine
cam.cancer.gov/about_us/contact_occam.htm
Offers health information on complementary and alternative medicine (CAM), therapies and tips for talking with healthcare providers. Also includes ways to find CAM programs and providers, and advice for paying CAM therapies.
National Center for Complementary and Integrative Health
Supplies scientific research on complementary and integrative health. Also includes health information, grant and funding options, training resources, news updates, and information on how to find a complementary and integrative health practitioner.
Men
The John Wayne Cancer Foundation
Creates programs for the advocacy and support of men fighting cancer and is associated with cancer research and education at the John Wayne Cancer Institute in Santa Monica, CA.
Pain
American Chronic Pain Association (ACPA)
ACPA aims to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
Prescriptions
Diplomat’s Oncology Navigator Program
Offers drug assistance. Diplomat Specialty Pharmacy’s Oncology Navigator Program provides clinical and reimbursement solutions to patients with oncologic and hematologic disorders. Financial assistance may be available for patients who meet annual benefit maximums, are among the working poor or on disability and financially unable to burden their co-payments or co-insurance liabilities.
Patient Care Coordinator
dspinfo@diplomatpharmacy.com
877-977-9118
4100 S Saginaw Street
Flint, Michigan 48507
Medicine Assistance Tool
Helps qualifying patients without prescription drug coverage get the medicines they need through the program that is right for them. Many will get their medications free or nearly free.
571-350-8643
Patient Advocate Foundation
Mission: To provide effective mediation and arbitration services to patients to remove obstacles to healthcare such as medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and lifethreatening illnesses.
RxAssist
Patient assistance programs are run by pharmaceutical companies to provide free medications to people who cannot afford to buy their medicine. RxAssist offers a comprehensive database of these patient assistance programs, as well as practical tools, news and articles so that healthcare professionals and patients can find the information they need.
Social Security
Updated information on the Extra Help with Medicare Prescription Drug Plan, an estimated value of $4,000 for qualified applicants.
800-633-4227
Women
Cleaning For a Reason
Cleaning For a Reason is a 501(c)3 nonprofit that cleans homes for women with cancer for FREE. Their partner maid services have helped over 10,000 women receive over $2.6 million in free house cleaning.
Foundation for Women’s Cancer
www.foundationforwomenscancer.org
Core mission: To increase awareness and education, support expanded research and training, and provide knowledge and hope for women diagnosed with cancers specific to them.
L Erickson USA
Provides a free headwrap or scarf in the pattern and color of your choosing for women or girls experiencing a loss or thinning of hair as a result of illness or treatment. Please call or visit the website to select the headwrap or scarf. Wraps and scarves can be shipped nationwide.
Livestrong’s Fertility Program
www.livestrong.org/we-can-help/livestrong-fertility
Dedicated to helping cancer patients with fertility issues.
MyOncofertility.org
An education resource that provides patients, parents and partners with cancer-related advice, animations, survivor videos and resources.
866-708-3378
S.H.E Circle
A wellness community by and for African American lesbian and bisexual women. As a national health education program, S.H.E Circle encourages African American women to learn about health issues, ask questions, share information, connect with resources and provide support to each other.
SHARE: Dedicated Experienced Support for women facing breast and ovarian cancers
For more than 35 years, SHARE has been a key source of information and support for women facing breast and ovarian cancers. By calling our toll-free helplines, people affected by these diseases can get immediate assistance from cancer survivors who are trained to provide support and information, and help callers sort through options and make informed decisions. SHARE offers a Breast Cancer Helpline, an Ovarian Cancer Helpline, a Caregiver Support Helpline and a Spanish-language Helpline. We also offer teleconferencing support for woman living with metastatic breast cancer. Every year, SHARE’s Helplines provide immediate help to thousands of callers who need to talk to someone who has been there.
212-719-0364
165 West 46th St
Suite 712
New York, NY 10036
Sisters Network, Inc. (SN)
SN seeks to bring awareness to the impact of breast cancer in the African American community. All chapters are run by breast cancer survivors. NE Florida Chapter is in Jacksonville.
Dianne Townsend
neflorida@sistersnetworkinc.org
904-757-6622; For Northeast Florida region: 904-757-6622
P.O. BOX 2939, Jacksonville, Florida 32203-2939
904-757-6622
The Mautner Project for Lesbians with Cancer
Provides support, education, information and advocacy for health issues relating to lesbians with cancer and their families.
Bladder Cancer
Bladder Cancer Advocacy Network
Increases public awareness, advances bladder cancer research, and provides educational and support services to the bladder cancer community.
Breast Cancer
ABCD: After Breast Cancer Diagnosis
www.abcdbreastcancersupport.org
Free one-to-one mentoring support to anyone going through the breast cancer journey as well as a free survivor staffed helpline.
Breast Cancer Action (BCA)
BCA was started by women in a San Francisco breast cancer support group who were frustrated by the lack of knowledge about their disease. BCA is now a national education and activist organization that asks the hard questions about what needs to be done to end the breast cancer epidemic.
info@bcaction.org
415-243-9301
Mailing Address:
548 Market St. PMB 17179
San Francisco, CA 94104-5401
Colorectal Cancer
Colon Cancer Alliance
A national patient advocacy organization that offers support, resources, news, events and research to cancer patients.
877-422-2030
Fight Colorectal Cancer
Offers support for patients, family members, and caregivers affected by colorectal cancer. Also serves as a resource for colorectal cancer advocates, policymakers, medical professionals and healthcare providers.
Endometrial/Ovarian/Uterine Cancer
Ovarian Cancer Research Alliance
Serves as an advocate for women with ovarian cancer. They work to increase understanding among the public and professionals and advance research for the development of an early detection test, improved healthcare practices and life-saving treatment protocols.
Ovarian Cancer Research Fund
Learn about ovarian cancer—risk factors, causes, signs and symptoms, clinical trials and other resources. The Hope Line, 1-877-OV-HOPE, is a free telephone counseling and referral service that helps patients and families cope with the challenges of an ovarian cancer diagnosis.
Esophageal Cancer
Esophageal Cancer Awareness Association
Provides information and support for esophageal cancer patients and caregivers.
Head and Neck Cancer
Head and Neck Cancer Alliance
Offers support, education and resources to patients with head and neck cancers.
Support for People with Oral and Head and Neck Cancer
Includes support, education, a survivor network, newsletters and clinical trials.
Kidney Cancer
Kidney Cancer Association
Provides information, clinical trials, sponsor support groups, physician referral information, and news for those affected by kidney cancer.
Leukemia and Lymphoma
Leukemia and Lymphoma Society (LLS)
Masters level social workers and health educators answer calls from patients and medical professionals. LLS also offers a patient financial aid program, copay assistance program and more. North Florida affiliate in Jacksonville.
Liver Cancer
YES
Provides information, resources, support, and hope for anyone affected by liver tumors.
Lung Cancer
GO2 Foundation for Lung Cancer
Provides information on risk, screening, diagnosis, and treatment of lung cancer. Also offers psychosocial support and advocacy for patients and those at risk.
LUNGevity
Provides CancerCare services for patients, survivors, loved ones, caregivers, and the bereaved. Services include counseling and support groups, educational publications and workshops, and financial assistance.
Marrow Cancer
National Marrow Donor Program
Conducts and supports research through public resources. Provides information for potential donors, patient advocacy aid assistance and patient education materials.
Melanoma
Melanoma International Foundation
Provides information on prevention and early detection, a toll-free hotline for patients and their families, and directs local screening and education programs.
Melanoma Research Foundation
Supports medical research in finding treatments, and educates patients and physicians about prevention, diagnosis and the treatment of melanoma.
Skin Cancer Foundation
Provides information and programs on education, prevention, early detection and treatment for skin cancer.
212-725-5176
Mesothelioma
Mesothelioma Center
Features information on the dangers of asbestos, mesothelioma cancer and where to find treatment facilities in your area. Patient advocates are also on hand to help patients get connected with doctor match programs.
Mesothelioma Hope
Mesothelioma Hope is a comprehensive resource for the patients and families of those that are suffering from mesothelioma & other asbestos related diseases.
Mesothelioma Resource Online
Mesothelioma Resource Online has created and developed this site to provide answers and support for people diagnosed with mesothelioma cancer, as well as their families and loved ones.
The Mesothelioma Group
Our goal at the Mesothelioma Group is to increase mesothelioma awareness and assist those already afflicted. We believe that any individual that is diagnosed with cancer deserves to have the best information and support available.
Multiple Myeloma
International Myeloma Foundation
The International Myeloma Foundation provides a toll-free hotline, educational materials and seminars for patients and their families.
Multiple Myeloma Research Foundation
Includes a newsletter, teleconferences, and news updates to those affected by Multiple Myeloma. The foundation also supports the drug discovery and development process in order to bring patients new therapies.
Pancreatic Cancer
Pancreatic Cancer Action Network
A national organization creating hope through research, patient support, community outreach and advocacy for a cure. Committed to programs and services that provide information to patients, health professionals and the general public. They seek to advance research, support patients and provide tools for patients looking to receive care.
Prostate Cancer
Prostate Net (PN)
Empowers consumers, patients, survivors and their families to help make the appropriate decisions relative to treating prostate diseases and insuring the desired quality of life.
Zero- The Project to End Prostate Cancer
Zero works to advocate its efforts towards a cancer free generation at federal and state levels, provides information for patients about treatment, and provides services to those at risk.
Sarcoma
Kristen Ann Carr Fund Sarcoma Forum
Provides funding for research and treatment of sarcoma, the education of young physicians, and seeks to improve the quality of cancer patient life.
Sarcoma Alliance
Provides information to patients and caregivers, an integrative discussion board, peer-to-peer services, financial assistance, and options for donating and volunteering.
Sarcoma Foundation of America
Advocates for research, raises funds for grants, and conducts education and advocacy efforts on behalf of Sarcoma patients.